Abstract
Objective: to determine the needs of older adults (OA) institutionalized in care homes in the Greater Metropolitan Area (GAM) of Costa Rica and to propose the necessary changes and care processes for the integration of palliative care programs. Methodology: a mixed exploratory study was conducted by telephone survey of 33 of the 63 GAM's OA care homes, as well as semi-structured interviews with thirteen health professionals and eight institutionalized OA. A convenience selection sample of OA was interviewed based on the average of residents with diseases in limited life conditions or in palliative condition of the total number of residents, who had adequate cognitive capacity oriented in time, space and person. The needs of these people were determined according to the model of Maslow and Virginia Henderson. The needs of health professionals working in nursing homes were also explored. Results: in the 33 residences of the GAM, 1650 resident OA were registered, 233 of them were with disease in limited life condition or palliative condition (14.1%), on average 7.1 people per residence (mode:2). Of the 8 OA interviewed, 50% determined to have some type of physical pain, it was possible to detect that all of them satisfied their social needs, generating links with the officials of the residences and the other residents, however, there was a limited relationship with their family group. They prioritized self-actualization needs focused on autonomy and physical independence to perform activities of daily living. They had the need to understand from the spiritual dimension that death is a natural process and is part of life. They did not manifest unsolved need for love and belonging. The health professionals of the residences interviewed indicate the need for training and changes in the infrastructure of the residences. Conclusions: the OA with diseases in limited living conditions of the GAM residences report feeling safe; however, there was evidence of a lack of sufficient human resources for care and the need to make a series of changes in their infrastructure. As well as the implementation of continuing education programs in Palliative Care for professionals.
References
Ley Integral para la Persona Adulta Mayor. No 7935 [Internet] . (15 de noviembre de 1999). Disponible en: http://www.pgrweb.go.cr/scij/Busqueda/Normativa/Normas/nrm_texto_completo.aspx?param1=NRTC&nValor1=1&nValor2=43655&nValor3=95259&strTipM#:~:text=Las%20personas%20adultas%20mayores%20tendr%C3%A1n,%2C%20pensamiento%2C%20dignidad%20y%20valores
Humphreys G. The health-care challenges posed by population ageing. Bull World Health Organ [Internet]. 2012;90(2):82-3. doi: 10.2471/BLT.12.020212.
Organización Mundial de la Salud [Internet]. Ginebra: OMS; 2022. Envejecimiento y salud; [aprox. 5 pantallas]. Disponible en: https://www.who.int/es/news-room/fact-sheets/detail/ageing-and-health
Universidad de Costa Rica. Centro Centroamericano de Población. II Informe estado de situación de la persona adulta mayor en Costa Rica [Internet]. San José: UCR; 2020. Disponible en: https://archivo.cepal.org/pdfs/ebooks/segundo_Informe_estado_persona_adulta_mayor_CostaRica.pdf
Navarro-Ureña I, Evans-Meza R, Bonilla R, Alvarado-Rodríguez Y. Evolución de la mortalidad por edad, sexo, causas y distribución geográfica en personas de 65 o más años en Costa Rica, 1970-2014. Rev Hisp Cienc Salud [Internet]. 2018;4(4):131-142. Disponible en: https://www.uhsalud.com/index.php/revhispano/article/view/380/212
Kane RL, Ouslander JG, Resnick B, Malone ML. Principios de Geriatría Clínica. 8a ed. México: McGraw-Hill; 2018.
Acuña Aguilar C. Cuidados Paliativos. Un modelo de atención paliativa en Costa Rica. San José: Editorial Santa Paula; 2014.
Dillman DA, Smyth JD, Christian LM. Internet, Phone, Mail, and Mixed-Mode Surveys: The Tailored Design Method. 4a ed. Estados Unidos: Wiley; 2014.
García González MJ. El proceso de enfermería y el modelo de Virginia Henderson. Propuesta para orientar la enseñanza y la práctica de enfermería. 2a ed. México: Editorial Progreso; 2004.
Instituto Nacional de Estadística y Censos (CR). Encuesta Nacional sobre discapacidad 2018: la discapacidad en Costa Rica [Internet]. San José: INEC; 2018. Disponible en: http://18.188.26.221:8082/repositorio/bitstream/handle/123456789/758/Infograf%c3%ada_Enadis%202018.pdf?sequence=1&isAllowed=y
Leiva-Saldaña A, Sánchez-Ramos JL, León-Jariego JC, Palacios-Gómez L. Factores predictores de deterioro cognitivo en población mayor de 64 años institucionalizada y no institucionalizada. Enferm Clin [Internet]. 2016;26(2):129-136. doi: 10.1016/j.enfcli.2015.09.006
Aldasoro Unamuno E, Mahtani Chugani V, Sáenz de Ormijana Hernández A, Fernández Vega E, González Castro I, Martín Fernández R, et al. Necesidades en cuidados paliativos de las enfermedades no oncológicas. Un estudio cualitativo desde la perspectiva de profesionales, pacientes y personas cuidadoras. Informes de Evaluación de Tecnologías Sanitarias Osteba Núm. 2006/04 [Internet]. España: Servicio Central de Publicaciones del Gobierno Vasco; 2012. Disponible en: https://www.osakidetza.euskadi.eus/contenidos/informacion/publicaciones_informes_estudio/es_pub/adjuntos/Cuidados%20paliativos.pdf
Instituto para la Atención de los Adultos Mayores en el Distrito Federal. Manual de cuidados generales para el adulto mayor disfuncional o dependiente [Internet]. México: Literatura y Alternativas en Servicios Editoriales; 2014. Disponible en: https://fiapam.org/wp-content/uploads/2014/09/Manual_cuidados-generales.pdf
Campello Vicente C, Chocarro González L. Necesidades de cuidados paliativos en enfermos no oncológicos con enfermedad crónica avanzada: una revisión sistemática. Med Paliat [Internet]. 2018;25(2):66–82. doi: 10.1016/j.medipa.2016.07.002
Ayala Híjar LC. Necesidades prioritarias de los adultos mayores según su percepción en un club del adulto mayor. Lima – Perú [Tesis de Licenciatura en Enfermería]. Perú: Universidad Nacional Mayor de San Marcos; 2017. Disponible en: http://cybertesis.unmsm.edu.pe/bitstream/handle/20.500.12672/5816/Ayala_hl.pdf?se
Alfaro Vargas N, Espinoza Herrera R. Informe de encuesta: Componentes psicosociales de la calidad de vida de las personas mayores en Costa Rica 2019 [Internet]. Costa Rica: Universidad Nacional de Costa Rica; 2020. Disponible en: https://repositorio.una.ac.cr/bitstream/handle/11056/18067/componentes_psicosociales_de_la_calidad_de_vida_de_las_personas_mayores_en_costa_rica_2019.pdf?sequence=1&isAllowed=y
Drews MF. La evolución de la esperanza en los pacientes con enfermedad terminal. Nursing [Internet]. 2017;34(5):9-10. doi: 10.1016/j.nursi.2017.10.004
Cesaro Lora CA. Esperanza en Pacientes Oncológicos Paliativos hacia una revisión sistemática. Psicooncología [Internet]. 2018;15(2):261-286. doi: 10.5209/PSIC.61435
Oarga C, Stavrova O, Fetchenhauer D. When and why is helping others good for well-being? The role of belief in reciprocity and conformity to society’s expectation. Eur J Soc Psychol [Internet]. 2015;45(2):242–254. doi: 10.1002/ejsp.2092
Reitinger E, Froggatt K, Brazil K, Heimerl K, Hockley J, Kunz R, et al. Palliative Care in Long-term Care Settings for Older People: findings from an EAPC Taskforce. Eur J Palliat Care [Internet]. 2013;20(5):251-253.Disponible en: https://www.sicp.it/wp-content/uploads/2018/12/8_EAPCTaskforcePalliativeCareforOlderPeople.pdf
Ministerium für Gesundheit, Emanzipation, Pflege und Alter (DE). Hospizkultur und Palliativversorgung in Pflegeeinrichtungen in Nordrhein-Westfalen. Umsetzungsmöglichkeiten für die Praxis [Cultura de hospicio y cuidados paliativos en hogares de ancianos en Renania del Norte-Westfalia. Opciones de implementación para la práctica]. Alemania: MGEPA; 2014. Disponible en: https://alpha-nrw.de/wp-content/uploads/2014/07/palliativ-in-pflegeeinrichtungen1.pdf
Heals D. Development and implementation of a palliative care link-nurse programme in care homes. Int J Palliat Nurs [Internet]. 2008;14(12):604-9. doi: 10.12968/ijpn.2008.14.12.32065.
Lansdell J, Mahoney M. Developing competencies for end-of-life care in care homes. Int J Palliat Nurs [Internet]. 2011;17(3):143-8. doi: 10.12968/ijpn.2011.17.3.143.
Froggatt K, Payne S, Morbey H, Edwards M, Finne-Soveri H, Gambassi G, et al. Palliative Care Development in European Care Homes and Nursing Homes: Application of a Typology of Implementation. J Am Med Dir Assoc [Internet]. 2017;18(6):550.e7-550.e14. doi: 10.1016/j.jamda.2017.02.016.
Kinley J, Stone L, Butt A, Kenyon B, Lopes NS. Developing, implementing and sustaining an end-of-life care programme in residential care homes. Int J Palliat Nurs [Internet]. 2017;23(4):186-193. doi: 10.12968/ijpn.2017.23.4.186.
O'Brien M, Kirton J, Knighting K, Roe B, Jack B. Improving end of life care in care homes; an evaluation of the six steps to success programme. BMC Palliat Care [Internet]. 2016;15(53):1-10. doi: 10.1186/s12904-016-0123-6.
Nash A, Fitzpatrick JM. Views and experiences of nurses and health-care assistants in nursing care homes about the Gold Standards Framework. Int J Palliat Nurs [Internet]. 2015;21(1):35-41. doi: 10.12968/ijpn.2015.21.1.35.
Hockley J, Watson J, Oxenham D, Murray SA. The integrated implementation of two end-of-life care tools in nursing care homes in the UK: an in-depth evaluation. Palliat Med [Internet]. 2010;24(8):828-38. doi: 10.1177/0269216310373162.
Hughes S, Preston N, Payne S. What went wrong with the Liverpool Care Pathway and how can we avoid making the same mistakes again? Int J Palliat Nurs [Internet]. 2013;19(8):372-3. doi: 10.12968/ijpn.2013.19.8.372.
Wowchuk SM, McClement S, Bond J Jr. The challenge of providing palliative care in the nursing home part II: internal factors. Int J Palliat Nurs [Internet]. 2007;13(7):345-50. doi: 10.12968/ijpn.2007.13.7.24346.
Watson J, Hockley J, Dewar B. Barriers to implementing an integrated care pathway for the last days of life in nursing homes. Int J Palliat Nurs [Internet]. 2006;12(5):234-40. doi: 10.12968/ijpn.2006.12.5.21177.
Jones A, Johnstone R. Reflection on implementing a care pathway for the last days of life in nursing homes in North Wales. Int J Palliat Nurs [Internet]. 2004;10(10):507-9. doi: 10.12968/ijpn.2004.10.10.16217.
Currow DC, Hegarty M. Residential aged-care facility palliative care guidelines: improving care. Int J Palliat Nurs [Internet]. 2006;12(5):231-3. doi: 10.12968/ijpn.2006.12.5.21176.
Cruz Lendínez AJ, Grande Gascón ML, García Fernández FP, Hueso Montoro C, García Ramiro PA, Ruiz López M. Distribución de enfermeras por Unidades de pacientes agudos y Unidades de Cuidados Intensivos en España. Index Enferm [Internet]. 2019;28(3):147-151. Disponible en: https://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1132-12962019000200012
Decreto Ejecutivo No 29679-S. Manual de Normas para el funcionamiento de Establecimientos de Atención Integral a las Personas Adultas Mayores [Internet]. (09 de agosto de 2001). Disponible en: http://www.pgrweb.go.cr/scij/Busqueda/Normativa/Normas/nrm_texto_completo.aspx?param1=NRTC&nValor1=1&nValor2=46801&nValor3=89001&strTipM=TC
Anstey S, Powell T, Coles B, Hale R, Gould D. Education and training to enhance end-of-life care for nursing home staff: a systematic literature review. BMJ Support Palliat Care [Internet]. 2016;6(3):353-61. doi: 10.1136/bmjspcare-2015-000956.
Ministerio de Sanidad Servicios Sociales e Igualdad (ES). Guía de Centros Residenciales para personas mayores en situación de dependencia [Internet]. España: IMSERSO; 2011. Disponible en: http://www.oiss.org/IMG/pdf/GUIA_DE_RESIDENCIAS_Prog-Ib-def-.pdf
Guerrero García M, Gómez Morales R, Sánchez García MR, Rodríguez Peral E, Montoya Juárez R. Fin de vida en residencia de ancianos desde la perspectiva de los residentes: revisión bibliográfica. Gerokomos [Internet]. 2016;27(2):63–68. Disponible en: https://scielo.isciii.es/pdf/geroko/v27n2/06_revision_05.pdf
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